Important Links
Articles
Family Raising Down Syndrome Awareness - by Jaime Daily on October 31, 2008 WTOC-TV
http://www.wtoc.com/Global/story.asp?S=9275232
Just One Of The Guys: Player born with Down syndrome finds his place at Hilton Head High - by Sam McDowell in November 6, 2008 Beaufort Gazette
http://www.beaufortgazette.com/336/story/608857.html
Aledo HS Senior with Down Syndrome Crowned Homecoming Queen: Kristin Pass Treats Peers Like Royalty, Friends and Family Say– by Emily Freedman on October 14, 2008 ABCNews
http://abcnews.go.com/US/Story?id=6025166&page=1
Inaugural 2006 Hilton Head Island Buddy Walk – Caroline & Friends
http://www.islandpacket.com/news/local/story/6199023p-5417789c.html
University of Alabama News; article on families with children in Rise program
http://uanews.ua.edu/anews2004/jul04/risegrads073004.htm
Clinics and Education
Hope Haven Children’s Clinic and Family Center
Jacksonville, FL
http://www.hope-haven.org/
MUSC Children’s Hospital
http://www.musckids.com/
MUSC Down Syndrome Center
http://www.musckids.com/about/dept_prog/down_syndrome_center/
The Rise School is accredited by the National Association for the Education of Young Children and specializes in children with Down Syndrome
Rise School of Denver
http://www.riseschool.org/denver/links.html
Rise Houston
http://www.riseschool.org/houston/links.html
Rise Stillwater
http://ches.okstate.edu/rise/links.html
Rise School of Tuscaloosa
http://www.riseschool.org/tuscaloosa/index.html
Advocacy Groups
Down Syndrome Association of Central Oklahoma
http://www.dsaco.org/
Down Syndrome Association of Houston
http://www.dsah.org
National Association for Down Syndrome
Primarily in the Chicago area, but great resource page, useful links.
http://www.nads.org/
National Down Syndrome Congress
Mission is to create a national climate in which all persons will recognize and embrace the value and dignity of persons with Down syndrome.
http://www.ndsc.org
National Down Syndrome Society
http://www.ndss.org/
Research and Publications
Down Syndrome: Health Issues
http://www.ds-health.com/
Down Syndrome Research Foundation and Resource Center
Dedicated to improving life for people with Down syndrome through research, education and services.
http://dsrf.org/
Down Syndrome Quarterly
Interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and covering all areas of medical, behavioral, and social scientific research.
http://dsrf.org/index.cfm?fuseaction=publications.dsq
Stanford School of Medicine, Center for Research and Treatment of Down Syndrome
http://dsresearch.stanford.edu/about.html
Down Syndrome Research Foundation and Resource Center
Dedicated to improving life for people with Down syndrome through research, education and services.
http://dsrf.org/
Down Syndrome: Health Issues
http://www.ds-health.com/
Products and Shopping
Hip Helpers
Hope Haven put these on Caroline and off she went.
www.hiphelpers.com
S&S Worldwide
Great educational and PT toys- got Caroline’s beanbags there!
http://www.ssww.com/
Super Duper
Fun, educational materials- another great site
http://www.superduperinc.com/index.html
Warner House
HAP Caps
http://www.warnerhouse.com/
Woodbine House: Books on Disabilities for children and teens.
http://www.woodbinehouse.com/
Great Book to explain Down Syndrome to young siblings
http://www.woodbinehouse.com/main.asp_Q_product_id_E_1-890627-06-2_A_.asp